SMA Ireland is the collective voice for the adults and children in Ireland with Spinal Muscular Atrophy

Established in 2019, SMA Ireland is a voluntary organisation dedicated to raising awareness of Spinal Muscular Atrophy in Ireland and campaigning for access to treatment for all. Time is a critical factor when treating SMA, so one of their top priorities is the introduction of SMA to newborn screening in Ireland.

Supporting those lives affected by Spinal Muscular Atrophy by sharing knowledge, raising awareness and accessing treatment until a cure is found.

SMA Ireland goals:

• Support families by providing information and a network of contacts

• Raise awareness and campaign for the disease to be part of Rare Disease screening

• Lobby for access to treatment and care

• Serve as a liaison between pharmaceutical companies and patient families

• Promote ongoing research and coordinate patient volunteers

• Initiate and maintain connections with the major international SMA organisations

SMAIRELAND.COM