SMA Ireland is the collective voice for the adults and children in Ireland with Spinal Muscular Atrophy
Established in 2019, SMA Ireland is a voluntary organisation dedicated to raising awareness of Spinal Muscular Atrophy in Ireland and campaigning for access to treatment for all. Time is a critical factor when treating SMA, so one of their top priorities is the introduction of SMA to newborn screening in Ireland.
Supporting those lives affected by Spinal Muscular Atrophy by sharing knowledge, raising awareness and accessing treatment until a cure is found.
SMA Ireland goals:
Support families by providing information and a network of contacts
Raise awareness and campaign for the disease to be part of Rare Disease screening
Lobby for access to treatment and care
Serve as a liaison between pharmaceutical companies and patient families
Promote ongoing research and coordinate patient volunteers
Initiate and maintain connections with the major international SMA organisations
This site is designed to help you learn about the early signs of spinal muscular atrophy (SMA) and what to do if you spot them
This website is intended for EU Healthcare Professionals only. Please confirm you are a Healthcare Professional